The ARRC Research Database Register, is an electronic information file containing names and contact details as well as medical and lifestyle information regarding people living with autoimmune illness that have expressed an interest in participating in research projects conducted by ARRC or in conjunction with ARRC. Contact us if you are interested in more information – HNELHD-ARRC@hnehealth.nsw.gov.au
This projects aims to investigate illness flares in people living with lupus. Within the first phase of the project flare event frequency and flare characteristics will be investigated. The second study phase will investigate the relationship between illness flare events and lifestyle activity factors, as well as environmental factors present in the indoor home and work environment.
ARRC has in the recent past completed a number of projects that explore the differences in nail and nail capillary appearance in people that experience autoimmune symptoms. The projects have involved the participation of both adult (INCA ) and paediatric patients (PINCA ) diagnosed with autoimmune illness and in some cases people that do not have any autoimmune illnesses. It is thought that nail capillary patterns can potentially enable a diagnosis of autoimmune illnesses such as Limited Systemic Sclerosis (LSSc) at an early stage in illness development, and allow appropriate treatment of identified persons to commence at an earlier stage than is currently possible.
The DIVIDEND project was a collaborative project between ARRC and Kaleidoscope John Hunter Children’s Hospital and looked at differences in blood vessel appearances in nails and the eyes in people that have diabetes. Some vessel patterns can help in the diagnosis of early signs for worsening diabetes, and allow treatment to commence to help relieve the symptoms.
A project to design exercise flipcards to aid all people to get moving regardless of mobility issues. The exercises are also designed to help with specific illness symptoms. Flipcard units will be available shortly.
The purpose of the research is to gather information 6on how making art, using visual narratives supports social and emotional well-being for people living with chronic autoimmune illnesses.
The ARRC Nutrition Needs Assessment explored the basic lifestyle habits that effect nutritional and general wellbeing of autoimmune patients. This project provided us with a guide to what specific needs patients have in regards to nutrition and the management of autoimmune illness.
This project aimed to investigate the way in which Lupus (i.e. systemic lupus erythematosus) can interfere with the ability to think clearly, thus creating problems with normal daily living.
Explore the prevalence of pulmonary hypertension in individuals with Rheumatoid Arthritis (RA) using stress echocardiography as a screening tool.
Clinical Trial for new drug therapy for people living with Pulmonary Arterial Hypertension.
A project to understand the needs of young people with autoimmune illness and to develop age appropriate educational and information resources for young people as well as for the wider community.